Patient Reported Outcomes (PRO) are health data provided by the patient through the reporting system. One patient-reported outcome is patient feedback about how they feel after being treated for a chronic disease or condition. PRO can be measured when patients are being treated or participating in clinical trials. PROs cover three domains or domains: physical, mental, and social health, such as physical ability, fatigue, pain, depression, sexual functioning, and satisfaction with social participation (or interactions). The tools (surveys) are designed to measure the PRO of any disease or health condition. PRO data are important to assess the effectiveness of medical care for terminal illnesses. PROs improve communication between provider and patient; Improving care and promoting clinical research. There are many obstacles to collecting PROs in a clinical setting such as: B. Staff workload – data collection, patient workload, language issues, space and budget issues, and competing priorities. For PROs to be useful, the PRO tool must be clinically relevant, valid, reliable, and easy to interpret; Collection should be integrated into clinical workflow; and information from PROs should be available at the point of care in real time to support clinical decision making. There are many practical considerations such as clinical staff sourcing, location/location/confidentiality, workflow management, eligibility time tracking, definition of eligibility criteria, selection of PRO capture format, audio, security, equipment and off-clinic access.
The goal of measuring health-related quality of life (HRQL) is to reliably and reproducibly measure the extent to which a disease or its treatment affects a person’s life. We can collect and interpret this information with PROMIS. What is PROMIS? The Patient reported outcomes Measurement Information System (PROMIS) is a highly reliable and accurate means of measuring patient-reported health in terms of physical, mental and social well-being. PROMIS tools measure what patients can do and how they feel when they ask questions. PROMIS measures the primary or secondary endpoints of clinical trials of treatment efficacy. PROMIS is specially developed for use in chronic disease research. These tools are questionnaires for interviews that are distributed in written form to patients via computers and PDAs. Patient responses are collected through robust reports and used by patients and physicians to improve communication and disease management by finding the most appropriate treatment plan. These tools help doctors better understand how different treatments affect patients and their symptoms. The eight criteria for selecting measures are suitability, acceptability, feasibility, interpretability, accuracy, reliability, validity, and responsiveness.
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